CPOY

CPOY 73 Documentary Gold: Live Like Lola

Lola Muñoz, 12, was diagnosed with diffuse intrinsic pontine glioma, or DIPG, on Aug. 26, 2016. It is an inoperable tumor located in the pons, a portion of the brainstem. The average life expectancy is between nine and 12 months; fewer than 10 percent of children with DIPG survive two years following diagnosis. While most childhood cancers have seen significant developments in treatment, in the past 40 years, none of the over 250 clinical trials for DIPG have shown any improvements in chances of survival. Lola has chosen to live every day to its fullest with the complete and utter support and encouragement from her family.

Caption
Slide 4 of 12
March 26, 2017
Because there are no drugs specifically targeted toward children with DIPG, doctors use drugs, approved by the Food and Drug Administration, that are meant for adults and tailor them for children in Phase I trials. Lola decided to participate in a trial at St. Jude Children's Research Hospital in Memphis, Tenn. Even though there was no guarantee that the trial would have any effect on her tumor, Lola underwent treatment to benefit DIPG research. Sacrificing her body to potentially help the next child with DIPG was more important than her quantity of life, exemplifying Lola's selfless nature. Melissa comforts Lola after her chemotherapy medications caused vomiting. Lola learns how to grapple with the ways in which DIPG has hindered her childhood.
Moriah Ratner / Syracuse University
    6dce797c-a010-4705-bf70-4acc0e23a51f
    8bb016af-6e69-4365-90f0-e2ad3f8c58a1
    abb44334-2cb0-4b53-afd4-8a4e024663bf
    275003bf-cd9e-4b82-8667-86a5306643ac
    70e5dacb-fa5c-4540-8500-e0605387f80e
    4890f52f-7e54-4621-8e62-a072494ff649
    fc0dc7db-7263-4f3e-8f4b-15fc02a45516
    bc1d1761-1e58-4609-98c6-afda90f88539
    697d432e-296e-4ad8-99da-c2bea5cc8f4e
    1d877770-70cd-40a5-b3cd-799145c48f8c
    See more at cpoy.org