CPOY

Finalist: You don't see what i feel

"The pain wasn't something I imagined." In Denmark, around ten percent of all women of childbearing age live with endometriosis - a women's disease where tissue resembling that in the uterus sits and bleeds elsewhere in the pelvic area and abdominal cavity.

In this project five women open up about what the disease has done to them from its hiding place. Common for all of them is that it has caused reduced fertility and strong pains in the lower abdomen, leading to one or more surgeries. Their process of diagnosis has been filled with uncertainty and doubt about what they felt in themselves. On average, it takes seven years to receive a diagnosis, and only 20 percent gets it confirmed.

None of the women had heard of endometriosis before it was written in their medical records. The cause of the disease is unknown. Women's diseases are generally underrepresented - and endometriosis is no exception. For the first time ever, funds were allocated in 2020 to research endometriosis in Denmark. Danish researchers demand a national action plan to ensure that women receive the proper treatment and a quicker diagnosis, as it can have significant implications for how the disease progresses.

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Endometriosis
February 3, 2024

"The pain is the worst part of my illness, but after that comes the medication." - Mette J., 44 years old. When Mette was told ten years ago, after nine surgeries, that doctors couldn't do more, her only option was to say yes to morphine. "The pain wasn't something I imagined." In Denmark, around ten percent of all women of childbearing age live with endometriosis - a women's disease where tissue resembling that in the uterus sits and bleeds elsewhere in the pelvic area and abdominal cavity. In this project five women open up about what the disease has done to them from its hiding place. Common for all of them is that it has caused reduced fertility and strong pains in the lower abdomen, leading to one or more surgeries. Their process of diagnosis has been filled with uncertainty and doubt about what they felt in themselves. On average, it takes seven years to receive a diagnosis, and only 20 percent gets it confirmed. None of the women had heard of endometriosis before it was written in their medical records. The cause of the disease is unknown. Women's diseases are generally underrepresented - and endometriosis is no exception. For the first time ever, funds were allocated in 2020 to research endometriosis in Denmark. Danish researchers demand a national action plan to ensure that women receive the proper treatment and a quicker diagnosis, as it can have significant implications for how the disease progresses.

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